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My PAWS Journal

Blog Disclamer

One person’s experience, a lot of research, and a very important disclaimer.

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Brian L.

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TL;DR: This blog is my personal experience, research, and self-experimentation, not medical advice or a treatment protocol. Benzodiazepine withdrawal can be dangerous, especially when stopped abruptly, so please involve a medical professional before changing your medication. I also want to make one thing very clear: acute withdrawal and protracted withdrawal are different states, and what I write about my experience with PAWS, BIND, and flumazenil should never be treated as instructions for someone else's situation.

Table of Contents

The Obligatory Disclaimer

Let’s do this !

I am not a doctor (but I’m not clueless either)

First and foremost, I am not a medical doctor and I have zero clinical training.

But I do have an education and a background in science (just not the medical kind), which mostly means I know how to read a paper, chase down a primary source, and tell an actual study from a vibe. And that’s exactly what I did. Reading the flumazenil literature, cross-checking, and taking notes like my life depended on it (because, well, it kind of did).

Here’s the thing though: it’s precisely because I take evidence seriously that I want to be crystal clear about what this blog is. This is my experience, my research, and my n=1 self-experiment. It is not a prescription. It is not a protocol. It’s a well-documented diary from someone who did their homework, citations and all.

If you take one single thing from this whole website, take this: talk to a medical professional. I know a lot of them dropped the ball for me too (that’s kind of the whole reason this blog exists). But “some doctors are clueless about benzo withdrawal” is not the same as “therefore, do whatever a stranger on the internet did.” Please find a good one. They exist.

Now the part I actually need you to hear. No jokes for a sec.

I’m not going to tell you what to do with your own medication. That’s between you and your doctor, not you and a blog. But I will tell you a fact, and I’ll tell you what happened to me, and then I’ll get out of the way.

The fact: stopping benzodiazepines abruptly can be genuinely dangerous. It’s well documented that sudden withdrawal from benzos can cause seizures and can, in some cases, be life-threatening. This is one of the withdrawals where the medical literature and the forums actually agree, and it’s not a small detail.

What happened to me: an abrupt stop is the part of my story that landed me in the ER thinking I was dying. That’s not the quirky part. That’s the part I wish someone had flagged for me before I found out the hard way.

So here’s the only “advice” I’ll give, and it’s the same advice a pharmacist would: please loop in a medical professional before you change anything about how you’re taking medication .

This blog is one weird person’s experience. Singular. n=1.

Everything I did, I did to myself, for myself, after roughly two years of research and being completely off benzos already. What worked for my nervous system (which I’m fairly sure is made of tissue paper and static electricity) may do absolutely nothing for yours, or worse. Bodies are wildly different. Doses are different. Situations are different. My “here’s what I tried” is a story, not a recipe. Please don’t read my protocol and go “cool, instructions.” They are NOT instructions.

Also, and this is important, there’s a giant difference between acute withdrawal and protracted withdrawal. Post-acute withdrawal syndrome (PAWS), protracted withdrawal syndrome (PWS), and benzodiazepine-induced neurological dysfunction (BIND). I go on about this acute-versus-protracted distinction a lot on this blog for a reason. Treatments that make sense in one situation can be a terrible idea in the other. If you skip that nuance, you’ll misunderstand basically everything I write. Please read this post about the difference between accute and protracted withdrawal

On the flumazenil stuff specifically

Flumazenil is a real drug with real effects and real risks. I am not endorsing self-experimentation, I am describing mine. I’m also not going to publicly hand out shopping links and exact doses, because I’ve seen how desperate PAWS makes people (hi, it’s me) and I don’t want anyone copy-pasting their way into a bad time. If I sound cagey about specifics sometimes, that’s on purpose and it’s out of care, not mystery-for-mystery’s-sake.

In summary:

  • I’m not a doctor. This is not medical advice. It’s a diary.
  • Stopping benzos abruptly can be dangerous (seizures, and worse). Talk to a professional before changing anything.
  • This is my experience only. Not a protocol. Not instructions.
  • Flumazenil is serious business. I’m sharing, not prescribing.
  • If you’re struggling badly, please talk to a real human.

Cool? Cool. Disclaimer complete. You may now return to your regularly scheduled ranting and over-researching, already in progress.

Resources (please use these, that’s what they’re for)

I’m just one person with a blog. These folks actually do this for a living. If you’re in a rough spot, or you just want good information from people who know way more than me, start here.

If you’re in crisis or having thoughts of suicide

  • 988 Suicide & Crisis Lifeline (US): call or text 988, or chat at 988lifeline.org. Free, confidential, 24/7, and they help with mental health AND substance-related crises.
  • Crisis Text Line (US): text HOME to 741741.
  • Samaritans (UK & Ireland): call 116 123.
  • Find A Helpline (international): findahelpline.com will point you to a free line in your own country. Wherever you are, there’s probably something.
  • If you feel you’re in immediate danger, please just call your local emergency number. No shame in it. None.

Benzodiazepine-specific info & support

  • Benzodiazepine Information Coalition: benzoinfo.com. A nonprofit run by physicians, researchers, and people who’ve lived it. Great evidence-based info, plus a “find a tapering-friendly doctor” tool.
  • Alliance for Benzodiazepine Best Practices: benzoreform.org. Doctors and scientists working to fix how benzos are prescribed and deprescribed.
  • The Ashton Manual: benzo.org.uk. The taper bible. This is the thing my doctor gave me a blank look about. Read it.
  • BenzoBuddies: benzobuddies.org. The forum. Where a lot of us lurk (guilty).
  • Colorado Consortium benzo/BIND resources: corxconsortium.org/benzodiazepine-resources. A big, regularly-updated link hub, including stuff on BIND specifically.
  • World Benzodiazepine Awareness Day: worldbenzoday.org. More resources, more community, plus the global list.

General substance use support (US)

  • SAMHSA National Helpline: 1-800-662-4357. Free, confidential, 24/7, treatment referrals and information.

(Quick note: a lot of these are US-heavy because that’s the internet’s default. If you’re elsewhere, Find A Helpline and the World Benzo Day resources page are your friends for local options. And these are groups I found helpful or credible, not sponsors. Nobody’s paying me. I have a blog with like four readers.)

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Hello,

I’m Brian

Welcome to my blog where I will share my personal experience with using flumazenil for PAWS and BIND and any other tricks and tips that helped me along the way. 

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